RRPF Recurrent Respiratory Papillomatosis (RRP) Patient Registry

Sponsor

Recurrent Respiratory Papillomatosis Foundation
PO Box 6643
Lawrenceville, NJ 08648
rrpf.org

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Registry Contact

RRPF RRP Patient Registry
registry@rrpf.org

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Institutional Review Board (IRB)

learningirb.org/
info@northstarreviewboard.org

An Institutional Review Board, for the purpose of protecting your/the Study Participant’s rights, has reviewed this registry. An Institutional Review Board is a group of people who are responsible for protecting the rights and welfare of people who participate in studies. For questions about your rights as a Study Participant in this Registry or to discuss other study-related concerns or complaints with someone who is not part of this Registry team, you may contact North Star Review Board at https://learningirb.org/.

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Social Media & Newsletter

Recurrent Respiratory Papillomatosis Foundation | Facebook
Recurrent Respiratory Papillomatosis Foundation (@rrpforg) | Instagram
Recurrent Respiratory Papillomatosis Foundation | LinkedIn
Recurrent Respiratory Papillomatosis Foundation (@recurrentrespiratorypapill5098) | YouTube
Recurrent Respiratory Papillomatosis Foundation Newsletter

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Visit the National Organization for Rare Disorders home page at rarediseases.org.